Not Todayy

Today's been really quiet. I couldn't sleep, again. I was up most of the night and just hung out in the TV room while Chris slept. He got up around lunch time. We heated up some leftover cabbage and watched the rest of Burn Notice. We finished the series today. Now what are we going to watch? Gah! We'll find something else on Netflix to dive into I'm sure. Going to give Firefly a chance while we ponder. There's only 14 episodes, but I've heard a lot of people praise it and want it back. The episodes are oddly long.

Daisy's been super huffy today, not sure what that's all about. Her life is so rough. My lungs have been hurting. Not sure why. It could be irritation from having bronchitis I suppose, but Chris was all worried about blood clots. I checked my oxygen level and that's okay, 98%, so meh.

Bacteria Babies

My Pop helped me put some magnetized latches on my cabinets on Friday. Tuxington was enjoying hiding in the cabinets far too much. Tried putting a rubber band around the handles which worked for a few months, but he's figured out how to wiggle his way in now despite them. We don't want him trapesing around in our cookware, or sniffing around at cleaning supplies. Unless he starts doing some serious lifts, these should keep him out.

I haven't been getting anything really extraordinary done lately. I keep trying to remind myself that I'm under no obligation to be a gladiator every day, but that I need not get discouraged and give up either. It's a balancing act, trying to encourage and push yourself, but not to push too hard. My rheumatoid arthritis has been pretty damn stable since I stopped dicking around with my steroid levels. I think 10-15mgs is going to end up being a necessary evil for me.  I don't forsee too much extra getting done today. I need to do a few chores around the house, and make a run to Wally World before I cook dinner. The nice part about how organized I have our home by this point is it doesn't take much at all to make it look pretty damn decent in here. While there's a number of projects left on my 'to do' list, the overall standard of cleanliness and organization isn't hard at all to maintain at this point, even on a rest day.

Acceptance

Chris and I stayed up until about 4am. I kicked his butt at Exploding Kittens. The bottle of Moscato I picked out was really good. Silly us, we didn't have a corkscrew! Luckily my grandparents did. Shows how often we drink. We stayed cuddled up in bed until around lunchtime, and then got up and ran out to the store for a few supplies.

I made pollo guisado today! We decided that would be our New Year tradition. It got pretty good. Chris demolished his plate of food. I didn't really make any resolutions per say this year. New Year's resolutions can be a great way/starting point for major life changes, but at this point I don't have anything drastic I need to work on every day of the year except being happy, and trying to serve the happiness of my life, home, and relationships as best as I can. I mean sure, I could resolve to lose weight or something cliche like that, but I think that's best done in lifestyle changes, and I'm fighting an uphill battle with steroids on that one. So, I guess at the end of all this blabbering, I just resolve to do the best I can at living as long and well as I can.

Monkey Business

Chicken noodle soup last night got really good.

Got up this morning and did a few things around the house. I felt like crap. Being sick is kicking my butt. Shortly after I got up I headed off to my Tysabri infusion with Chris. I took some of my homemade candy with for the staff.

There's a new girl during my infusion time slot. She's pretty cool. Has a lot of stories. She works two jobs still, one full time and one part time. Her MS isn't very advanced yet. She's been doing Avonex, but started to have some cognitive decline and switched to Tysabri to nip it in the butt. Plus Avonex came with weekly flu symptoms. She has eight dogs, they're small, but still! She also has two mini-pigs. I don't know how mini a sixty pound pig is, but they're cute. She used to do exotic wildlife rehabilitation and had mini-deer, various types of monkeys, etc. She's full of stories, so it'll be pretty fun to have infusions with her. She's actually one person that I could see myself getting along with. Most of the others I don't have much in common with besides MS.