A Fork in the ...Toe?

Oi have I been busy. My body's been going crazy for some reason. Getting sick probably riled up my immune system good. Rheumatoid and fibro have everything hurting. MS has my fine motor skills all screwed up, shocking nerve pain, tremors, balance issues, and some serious verbal vocabulary problems.

The insomnia isn't helping much either. When I do sleep I've been having such vivid nightmares that my screaming wakes Chris up, and he in turn wakes me up.

 

It's frustrating, but I'm doing the best I can to manage despite it. I've settled in to 10-15mgs of Prednisone a day again. That's been helping a great deal with symptom management, but I've been constantly starving in result.

I really need to go get lab work done sometime very soon. My JC virus testing is way past due. I haven't gotten my regular labs done for my rheumatologist in awhile, and my PCP has wanted some labs from me for awhile now.

Chris was off on Monday; it was also his pay day. I didn't really press to run errands though because I knew he's been feeling a bit run down since he's been sick. We didn't really have anything of urgent need either. We filled the gas tank, hit up the bank, grabbed some lunch and went home. Spent the day together playing video games and what not.

I've been super busy. Undecorating from Christmas, working on some little projects around the house, and a ton of fun stuff from the wedding is showing up. We got videos from my Uncle, pictures from the photographer, and a lot of memory keeping to do! The pictures are gorgeous. It's hard to decide what to put where.

It's Alive!

Today was a quiet day. We slept in until eleven-ish. We were up late last night discussing whether or not the toaster from The Brave Little Toaster was alive, or a robot. Chris is convinced they were all robots. The argument carried over onto Facebook. The majority of people agree with me, yet Chris still refuses to be swayed. He insists that since it's a inanimate object it must be a robot with artificial intelligence. By that theory though that would mean all the toys in Toy Story were robots too. He's silly. I'm so glad that this is the type of arguments we have in our marriage. If you want to check out the fun on Facebook feel free to here:

So Chris and I lay here talking about the lamest shit at night. Settle our argument Facebook! Are the appliances from the Brave Little Toaster robots or alive with consciousnesses??

Posted by Trisha Amanda Archeval on Sunday, January 3, 2016

Bubba Wubba Wha?

Today has been very busy already, but very productive. I got up when Chris got up for work and started on things around the house. Straightening up, dishes, cat litter, garbage & recycling, freezing some extra holiday treats, etc. I've been running around most of the morning doing something. Finally took a break and sat down, and I find myself tinkering with my tablet now instead.

Downloaded Picasa on most of my devices and I'm figuring out Google Photos. It's pretty handy. It let's me easily upload images from any of my devices and share them between devices effortlessly, and it makes it really simple to upload them to my blog. Which in turn makes it easier to share with you guys.

Chris just came home from work about ...seven hours early.

I was all who's in our house? And he walks into the room looking like death warmed over. Apparently he threw up everywhere at work and got sent home. From one sympathetic puker to a potential-nother, I'll spare you the details. He needs a doctors note now to go back to work since he's in food service. He doesn't have health insurance yet so we'll be making a trip to the hospital later.

Having to use the hospital like a PCP is one of the many things wrong with our broken healthcare system.

I'm surrounded by sick people.

Doom.

Seriously though, my immune system gets regularly nuked, and is about to get nuked some more tomorrow. Everyone around me is acutely sick with a petri dish of crap. This does not bode well for me.

My Uncle Keith gave me a DVD of our wedding ceremony when we were at their house on Friday. I have plans to upload it to YouTube so that I can share it with those of you who would have liked to been there but were too far away.

I have to go see my regular rheumatologist today for a follow up, and then I suppose it's off to the hospital with Chris. Later I'm going to make a homemade chicken noodle soup. I can always go for a good hearty soup, and it's good for what ails you apparently.

Last night, it was hilarious, I snatched Chris' pack of cigarrettes away from him and I was holding them behind my head. Suddenly I got a spasm in my hand (yay MS!) and dropped them behind the couch. Hahahahah. I laughed so hard for about twenty minutes. Chris was far less amused, but it was funny. I guess you had to be there.

Our family likes to have fun.

In example, these hilarious pictures from Christmas 2014:

And this hilarious picture of my grandmother from Sunday:

Playing phone tag currently trying to get ahold of my dysautonomia medication. My pharmacy put in a new prescription request to my doctor last Wednesday because I ran out of refills and never got a response, and I am out of meds. Fun.

It's not like it has warnings all over it not to suddenly stop taking it or anything. *cough*

Anywho, time to get ready to get out of here!

Yikes!

I've been seriously slacking in the blogging department. In my defense life has been crazy. Shortly after my last post Daisy was attacked by another dog. She had to get emergency stitches. She's healing up nicely at this point. Chris was also in the ER for kidney stones.

I've taken up some major redecorating and reorganizing projects in our house that have had me pretty occupied. While I should be documenting and sharing them with all of you, it's been pretty exhasting just getting it done.

My rheumatologist is switching me back from Rayos ($12k+ a month) to prednisone (a few bucks a month) at my request so I can once again try to cut my ties with steroids. It's not easy, and I've found that now my sugar is crashing again in the middle of the night. Nothing can ever be simple.

Rehearsal Dinner

Today was a super exciting day. We had our wedding rehearsal, which made everything feel really real. We did things a little unconventionally and had our rehearsal the week before the wedding, and boy am I glad we did from the viewpoint of someone who's chronically ill and only has so many spoons in a day. I'm trying my best to enjoy all aspects of our wedding and planning, so I try to plan things according to my energy level. Traditionally the rehearsal and decorating is done the night before the wedding, but I knew both in one night would be too much for me, and it really would have been. Seriously, take my advice and split it up if you can.

It's a decent drive from our house, but I like car rides with Chris. We generally wind up in some type of interesting conversation. Today was about us, and our relationship. I went on about how I partly think we're so successful together because we love each other for who we truly are. We don't try to limit or change one another. Chris announced that he knew we were going to get married before we even started dating, which I think was absolutely sweet/romantic/whatnot.

Free Candy

Tux tried to get a shower with me, and he quickly learned that he had made a huge mistake and promptly ran away.

Watched The Flash for a bit and made fish sticks, mushroom rice, and southern style butter beans for dinner. Ran out to the store with Chris. Now he's playing Fallout. We preordered Fallout 4 ages ago and the strategy guide. He's really excited for it to come out, but I told him no playing it until after the wedding and honeymoon. Otherwise, he's going to be completely distracted and that would suck.

It's soon only 21 days (three weeks) until the wedding. I still need to write the hand fasting ceremony. Probably do that tomorrow. I'm certain there's something silly we're going to totally forget about. Unity candle and no lighter, something. Hopefully nothing too serious. Luckily if it is the lighter we forget Chris generally has like six of them in his pockets.

Sneak Peek!

A sneak peek of our photo shoot today! I told you it was adorable! :)

I'm using this collage Tania made for the front cover of our wedding program. I'm pretty excited that she did it already because now I can get my programs done, printed, and assembled. Chris keeps saying they're more of a book than a program. They're only 5x7 though, and come on, programs are supposed to be informative! We have the added feature of our hand fasting ceremony too to add into the program and explain since most people do not know what it is.

Only 26 (25 in about twenty minutes) more days until the wedding! So much to do yet!

Well, It Doesn't Say Keep Off the Grass?

Today was an exciting day! Engagement picture day!

Yes. We really did get our engagement pictures done less than a month from our wedding, haha.

But no really, we don't procrastinate that bad. It's just we weren't planning on getting engagement pictures, but they came with the package from our wedding photographer.

We decided to get our pictures taken at Schell's Mini Golf.

We enjoy golfing together, and their mini-golf course is really pretty. Plus I thought it would be sort of unique.

I had to get up at 6am in order to get ready because I had an 8am hair appointment and had to meet Tania (our photographer) at ten.

So Much for Early!

After our chestnut experiment we wandered out to get some things done.

Our first stop was CVS to pick up some more prescriptions and Halloween candy. We keep buying Halloween candy with coupons for trick-or-treaters, and it keeps disappearing before Halloween. It's a problem.  It's mainly my grandmother and Chris dunking into it. I'm generally not a big candy person, but I do seem to have a weakness for Kit Kats as of late.

CVS has these giant blended bags of miniature candies for twenty bucks. I just so happened to have five dollars in extra bucks and a three dollar coupon, so I got them for roughly twelve, and it totally filled my candy bowl at home. My grandmother already found her way into it.