You Never Know Who's Watching...

I haven't blogged in quite some time.

I've been busy living life and adjusting to my new normal.

Even though I'm not quite sure what that is yet.

I started a new chemotherapy in March that has worked wonders for my ability to function day to day, yet my inflammation markers continue to climb up and up.

Today's actually the crappiest I've felt in quite some time, but I'm hoping its just a result of over doing it. I do that a lot, still. Learning new limits is hard.

I got a long awaited tattoo.

Did some fishing with my husband.

Between a Rock and a Hard Place...

Bah. I am so worn out, and as a result I've been so lazy. The little bit of stuff I am getting done around the house is taking some tremendous inner-dialogue pep-talks. My Tysabri infusion didn't make my stomach as bad as it had been this time. Thankfully so, the increase in steroids has me starving. I'm constantly hungry. It did make me itchy as all hell though. So.itchy. That's annoying.

I've been getting some serious nerve pain in my right hip/leg/foot the past few days. This is the same hip that I broke in a car accident a few years ago and had major surgery on. I'm not sure if the nerve pain is a result of the slow nerve regrowth reaching a certain point after all these years, or if it's my MS. I hate things like this that could be from multiple things. Especially when there's really no way of telling which. If it is from my MS I likely have a flare starting, which is bad news. Last time I had nerve pain in my leg like this that turned into a flare I fell down a set of stairs randomly when my leg went numb.

Monkey Business

Chicken noodle soup last night got really good.

Got up this morning and did a few things around the house. I felt like crap. Being sick is kicking my butt. Shortly after I got up I headed off to my Tysabri infusion with Chris. I took some of my homemade candy with for the staff.

There's a new girl during my infusion time slot. She's pretty cool. Has a lot of stories. She works two jobs still, one full time and one part time. Her MS isn't very advanced yet. She's been doing Avonex, but started to have some cognitive decline and switched to Tysabri to nip it in the butt. Plus Avonex came with weekly flu symptoms. She has eight dogs, they're small, but still! She also has two mini-pigs. I don't know how mini a sixty pound pig is, but they're cute. She used to do exotic wildlife rehabilitation and had mini-deer, various types of monkeys, etc. She's full of stories, so it'll be pretty fun to have infusions with her. She's actually one person that I could see myself getting along with. Most of the others I don't have much in common with besides MS.

Happy Sammich Day!

Today was as busy as expected, if not busier. Started off the day being sabotaged by the stupid time change. Forgot to change the time on our alarm clock, so we got up an hour too early for my infusion. Considering how late we went to bed, I tried to go back to sleep for an hour but was not successful.

Started undecorating from Halloween. Ran up to Hamburg and stopped at Dietrich's Men's Shop. We lost our ring bearer very last minute, and we had paid for his tuxedo rental. Thankfully it wasn't so last minute that we couldn't cancel the rental and get our money back. A day later and we would have been screwed and I would have been mad. I really enjoy Dietrich's. The owner is very nice and helpful. The shop is well kept, well stocked, and reasonable. If you're looking for something nice for the man in your life it's a good place to look. They carry lots of interesting things on top of nice clothing.

No matter how well prepared and organized you want to be as a bride, chaos will ensue as your wedding gets closer.