Mariana Trench

Last night we made use of some of the bass we caught for dinner. I made a long and wild grain rice and sauteed mushrooms, onions, red pepper, and garlic in lemon juice, salt, and pepper. We stuffed the bass with the mixture and baked. It was pretty damn good. 

We ate it with some bruschetta Chris brought home from work.

The Never Ending 'Flu'

Ever lay awake in bed with a thought so poignant it just begs to be written down? That's what this blog post is.

The weather has been insane here lately. It's been an unseasonably warm winter. Thunderstorms when there should be snowstorms. It goes from near 80 degrees one day, to 40 the next. 

As a result everyone's getting sick. Acute illnesses are no fun, and it's damn near expected to be down and out from them. Most people hide in bed, or gravitate to an area most comfortable. Stay in comfortable clothing, eat comfort foods, and skip out on any current responsibilities. It's not only tolerated by others, it's expected and encouraged. Why? Because being sick sucks. You want to be as comfortable as possible, and do as little as possible. Anything to ease the discomfort. Anything to speed recovery.

Meth

Today, has been a terrible terrible day. It all started out with getting our mail. All we got in the mail today was a single piece of mail, from the PA Department of Health. So I was all 'Heyyy derpenstein this looks important!' And Chris was all 'garbleaksgjwoiegaslkbna' because he was still in bed, but he said I could open it. So I open it and see this:

Monkey Business

Chicken noodle soup last night got really good.

Got up this morning and did a few things around the house. I felt like crap. Being sick is kicking my butt. Shortly after I got up I headed off to my Tysabri infusion with Chris. I took some of my homemade candy with for the staff.

There's a new girl during my infusion time slot. She's pretty cool. Has a lot of stories. She works two jobs still, one full time and one part time. Her MS isn't very advanced yet. She's been doing Avonex, but started to have some cognitive decline and switched to Tysabri to nip it in the butt. Plus Avonex came with weekly flu symptoms. She has eight dogs, they're small, but still! She also has two mini-pigs. I don't know how mini a sixty pound pig is, but they're cute. She used to do exotic wildlife rehabilitation and had mini-deer, various types of monkeys, etc. She's full of stories, so it'll be pretty fun to have infusions with her. She's actually one person that I could see myself getting along with. Most of the others I don't have much in common with besides MS.

Campylofuck

The mix-up with my prescription today seems to have came from my name change. I didn't change my name with my cardiologist yet, but did with the pharmacy, so when they got the fax in my married name they were all 'That's not our patient!' and scrapped it rather than following up with the pharmacy. Meh.

They called it in though, just waiting on the pharmacy to fill it now.

This whole name changing thing is a pain in the butt. There's so many places that you have to change it at, and when you have a memory like mine after awhile you start to forget where you actually changed it. I still haven't even changed it with the social security office. I need to get that done.

Appointment with my rheumatologist today was rough. He was running behind as usual. Between that and how long my appointment took we were there over two hours.

Bubba Wubba Wha?

Today has been very busy already, but very productive. I got up when Chris got up for work and started on things around the house. Straightening up, dishes, cat litter, garbage & recycling, freezing some extra holiday treats, etc. I've been running around most of the morning doing something. Finally took a break and sat down, and I find myself tinkering with my tablet now instead.

Downloaded Picasa on most of my devices and I'm figuring out Google Photos. It's pretty handy. It let's me easily upload images from any of my devices and share them between devices effortlessly, and it makes it really simple to upload them to my blog. Which in turn makes it easier to share with you guys.

Chris just came home from work about ...seven hours early.

I was all who's in our house? And he walks into the room looking like death warmed over. Apparently he threw up everywhere at work and got sent home. From one sympathetic puker to a potential-nother, I'll spare you the details. He needs a doctors note now to go back to work since he's in food service. He doesn't have health insurance yet so we'll be making a trip to the hospital later.

Having to use the hospital like a PCP is one of the many things wrong with our broken healthcare system.

I'm surrounded by sick people.

Doom.

Seriously though, my immune system gets regularly nuked, and is about to get nuked some more tomorrow. Everyone around me is acutely sick with a petri dish of crap. This does not bode well for me.

My Uncle Keith gave me a DVD of our wedding ceremony when we were at their house on Friday. I have plans to upload it to YouTube so that I can share it with those of you who would have liked to been there but were too far away.

I have to go see my regular rheumatologist today for a follow up, and then I suppose it's off to the hospital with Chris. Later I'm going to make a homemade chicken noodle soup. I can always go for a good hearty soup, and it's good for what ails you apparently.

Last night, it was hilarious, I snatched Chris' pack of cigarrettes away from him and I was holding them behind my head. Suddenly I got a spasm in my hand (yay MS!) and dropped them behind the couch. Hahahahah. I laughed so hard for about twenty minutes. Chris was far less amused, but it was funny. I guess you had to be there.

Our family likes to have fun.

In example, these hilarious pictures from Christmas 2014:

And this hilarious picture of my grandmother from Sunday:

Playing phone tag currently trying to get ahold of my dysautonomia medication. My pharmacy put in a new prescription request to my doctor last Wednesday because I ran out of refills and never got a response, and I am out of meds. Fun.

It's not like it has warnings all over it not to suddenly stop taking it or anything. *cough*

Anywho, time to get ready to get out of here!

Disregard

Busy busy day. I got my entire list of phone calls done already thankfully. I have some chores to do yet, but I'm pretty proud of how focused and efficient I was this morning.

Called my insurance company and the girl was all 'Ohh I don't know whyyy they sent you that. Just disregard it!' And I was all yeah, disregard it until they cancel my policy and my shit's fucked up all month. And she's all 'Ohh but they shouldn't your policy is paid for. I don't understand what the problem is.' And I'm all just because they shouldn't doesn't mean they're not going toooo. And she's all 'Noo, it must have crossed in the mail. Oh wait, you paid early, hmm, I don't know. It will be fine.' And I was all ........

Twenty bucks says my policy gets cancelled anyways now, and I'm going to be pissed.

Scheduled and rescheduled a bunch of appointments. Cancelled our Sands reservation because of finances.

I'm most definitely getting sick. I'm rocking a wicked earache and some stuffiness today. Started antibiotics yesterday because I've been rocking a fever off and on so I knew it was coming. Luckily I have some time yet before the wedding to kick it. I hate fevers because I get cold, and then I bury myself in warm things and suddenly the fever relaxes and my MS is ready to have a melt down between the fever and the eight thousand layers of heat I've buried myself in. It's good times.

Not sure what I'm cooking today. Most likely leftovers for lunch. Dull day, but considering all the hectic days ahead some quiet time isn't a bad thing.