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Showing posts with label fatigue. Show all posts
Showing posts with label fatigue. Show all posts

Monday, May 16, 2016

Surviving

It's been a rough couple of days here. Work has been busy for Chris. Finances are tight as the animals needed a ton of items replenished this week. I saved about 50$ with coupons though which helped. My immune system is up to no good. I've been noticing small things the past week or so layering on top of my recent extreme fatigue. Missing when I go to grab things, frequent stumbling, mixing up words, dropping things. While it's sparse and barely noticeable to anyone else, it all stands out like an emergency siren to me. Symptoms of my MS are generally rarer anymore unless there's a trigger like heat, and they've been increasing in frequency and severity all of the sudden. Last night when we went to the store I developed a bad tremor in my left hand while pushing the cart, and I stumbled about six times. Then I later developed spasticity in my right hip and it has yet to give me relief. I'm struggling with stairs, and limping when I walk. I'm hoping with some rest it will all calm down, but it's starting to look like it's adding up to a relapse. If it continues to get worse in severity I'll need to go see my neurologist and get on a solumedrol drip before I lose my ability to walk all together. As much as I hate solumedrol, I enjoy walking. I'm trying really hard to be optimistic that it's just a passing exacerbation from stress or whatever, but as the frequency and severity builds I'm soon going to have to be a realist.

Wednesday, May 11, 2016

Chris' Birthday - 2016



Yesterday was my husband's birthday!

Holidays are a big deal to me. I need very little reason to celebrate with those I love. And a celebration all about the man I love most? I mean c'mon.

Monday afternoon I spent getting some cards ready to mail and getting my husband's birthday card ready. I don't know how to just give a plain card. It's so impersonal.

So I broke out my sticker box and got to it. Chris thought the stickers I put in his birthday card were actually part of the card! Haha, I thought that was sweet. A card I was sending to a particular friend of mine is a long over due Christmas card. The post office has failed me twice now on this. It better not fail me again. I had trouble getting a card to another person too. Different states for each of them.

I still have a few more cards to make and send out, but I felt productive nonetheless.

Sunday, December 20, 2015

Smudge

Yesterday wound up being pretty quiet. My Pop visited for a bit and surprised me with a turkey sammich which was cool.

I got a bit of stuff done around the house, and then went to my grandparents and ate dinner with them and my Mom. They gave me a plate for Chris when he got home from work so that saved me some effort last night. Went out with him to fill the car with gas. One tank usually lasts us two weeks, but we ran extra out with looking at Christmas lights. We watched a bit of TV and crashed as he had to be back at work at seven.

Today was a super lazy day for me. I got a few things done around the house after he went to work, and sat down in the TV room. Forgot the fireplace was running, and fell asleep. Story of my life lately.

At least I get to spend time with Chris today, as he actually works the same shift tomorrow so we'll have more than eight hours before he has to be back at work.

I just made my last coffee. This is a problem. I must restock.

Tuesday, December 15, 2015

Yikes!

I've been seriously slacking in the blogging department. In my defense life has been crazy. Shortly after my last post Daisy was attacked by another dog. She had to get emergency stitches. She's healing up nicely at this point. Chris was also in the ER for kidney stones.

I've taken up some major redecorating and reorganizing projects in our house that have had me pretty occupied. While I should be documenting and sharing them with all of you, it's been pretty exhasting just getting it done.

My rheumatologist is switching me back from Rayos ($12k+ a month) to prednisone (a few bucks a month) at my request so I can once again try to cut my ties with steroids. It's not easy, and I've found that now my sugar is crashing again in the middle of the night. Nothing can ever be simple.