We've only been awake for about four hours so far and today has already been crazy. We stayed up pretty late last night, and I actually slept really good for a change which was nice. We got up at about one, Chris helped me do some chores around the house, and then we had to scurry off to my rheumatology appointment.
I love having Chris with at my appointments. He remembers things that I forget about. Also I have a bad habit of downgrading my symptoms and pain for some reason. While I might tell the doctor that I've been okay, Chris is quick to jump in and say that I've been struggling to wash dishes all week because my hands hurt.
The doctor was actually running pretty on time. He's usually running extremely late, but we never mind because he's one of the few doctors that runs late because he actually spends time with his patients. They really should schedule his appointments differently though, but oh well.
Anne was his nurse today and I haven't seen her in ages. He usually has Ashley, she must be on vacation or something. Anne was excited to hear about the wedding. She checked my vitals, my BP was great, 110/70. My temperature on the other hand was 101 for some reason. Not sure why because I feel fine. Well, no worse than usually that is. Haha.
Griffin came in and we talked about Jefferson and how I was feeling. He agrees with their erythromelalgia and fibromyalgia diagnosis. We played the 'does this hurt?' game. He's keeping me on the Xeljanz, upped my Rasuvo dose to 25mgs. I told him how the longer I was down to 10mgs of steroids the worse I was starting to feel instead of getting better with time. He says I've been on steroids for years so as the dose starts to get lower it's going to be harder and harder. He said I should wait until after the wedding and start doing 15mgs two days in a row, and then 10mgs, and then 15mgs two days in a row, so on and so forth. Then starting the new year start doing every other day switch between 15mgs and 10mgs. I'm determined to get off of this crap, and I'm glad he's supportive of it. Chris brought up what a jerk Kolva was about us getting married, Griffin was like well that's not very nice. He was like I think that just shows just how meant to be you guys are. He gave me some scripts for the next two months so I don't have to worry about stopping in until my next appointment. And some samples to hold me over until he gets some things put through and changed with the specialty pharmacies.
Griffin was amused by my Ninja Turtle Band-Aids I had on.
I love wearing fun Band-Aids. People can be way too serious. Why not make something sucky (a booboo) more positive?
